Lily and her Monster

     Knight in the Forest of the Pons

(Journey to the Syndrome)

This is a story about Lily, the sweetest little girl who lives in the Kingdom of Sperenza and the challenges she must endure from the chronic symptoms caused by an unruly Syndrome that has inundated her brain. Encephalotrigeminal angiomatosis or better known as Sturge Weber is the name of the syndrome and it is a fierce beast. This fiend has many characteristics some of which are… angry , annoyed , domineering, determined , dangerous , cruel , crafty ,obnoxious persistent rowdy , rude and uncontrollable, the list goes on . The syndromes most noticeable feature is a fiery red face and when this monster strikes its intended victim the mark it leaves is the same. Since the syndromes origin is unknown it is very hard to fight. Warriors of all kinds have battled this beast but the beast slithers on. There is however, one warrior who will give his own life if need be to save sweet Lily from her monster. For the rest this story the syndrome will be referred to as a dragon named Brocha who above is stated as being an engine of destruction. Let the war begin.